ACCESSING EMBARC DATA & SAMPLES
The EMBARC registry and EMBARC-BRIDGE biobank are valuable resources developed to support high-quality, collaborative research into bronchiectasis. As such, we offer a selection of samples to support research.
If you are interested in accessing these resources for an upcoming research project, please review the available options below and complete the relevant registration form.
If you have any questions or require assistance, please contact us.
The EMBARC registry now holds comprehensive clinical data for >20,000 individuals with bronchiectasis from 300 research sites across 27 EU and non-EU countries, including baseline data and data obtained from annual follow-up.
A list of the available clinical data collected as part of the EMBARC registry can be found here.
EMBARC-BRIDGE holds clinical data and biological samples for >1,500 individuals with bronchiectasis across Europe.
EMBARC-BRIDGE collects the comprehensive clinical data collected within the EMBARC Registry as well as biological samples at recruitment with annual (± 3 months) follow-up data collected for up to 3 years following initial recruitment – 4 study visits in total.
An overview of the biological samples collected as part of EMBARC-BRIDGE is shown below.
Various large scale, biological datasets have been generated from the biological samples collected as part of EMBARC-BRIDGE.
A list of the available biological datasets can be found here.
EMBARC also collects bacterial isolates from those with non-cystic fibrosis bronchiectasis, with associated clinical metadata and whole genome sequencing (WGS) data also available. The collection includes >20,000 organisms, with a predominance of Pseudomonas aeruginosa.
Pathogens | Number of Isolates | Clinical MetaData & WGS |
P. aeruginosa | >10,000 | Comprehensive and some WGS |
H. influenzae | 500 | Comprehensive and some WGS |
Others- >50 organisms | >1000 | Comprehensive |
To request access to EMBARC data or biological samples, please complete the appropriate form via the links below.
Your submission will be reviewed, and access will be granted based on availability and eligibility criteria.
Please note that in case of a successful application, you will be asked to sign a declaration “Statement on the use of data” that you will use the data only for the purposes mentioned in this application form and you will be held responsible if these data will be transferred to another person or will be used for any other purpose(s).
If you have any questions or require assistance, please contact us.