PATIENT RESOURCES

EMBARC/ELF Patient Resources

The collaboration between EMBARC, the European Lung Foundation (ELF) and the Bronchiectasis Patient Advisory Group (PAG) has led to many impactful resources for patients, including…

The Bronchiectasis Patient Checklist

The Bronchiectasis Self-care Guide

The Annual Bronchiectasis Patient Conference

This guide has been written by people with bronchiectasis to help others living with this condition.

The guide highlights why self-care is so important in being able to live well with bronchiectasis and discusses key self-care topics including physiotherapy, exercise, diet, coping with breathlessness and fatigue, and taking care of your mental health. 

The Bronchiectasis Self-care Guide is also available to download in Italian.

This checklist details what most patients with bronchiectasis should expect from their care and allow patients to better understand their condition and advocate for their own clinical care.

Patients can discuss the recommendations on the checklist with their specialists, doctors or nurses and keep track of each recommendation by ticking it off the checklist.

The Bronchiectasis Patient checklist is also available to download in German, Greek, French, Polish & Romanian.

Every year, the ELF and EMBARC run this free, online conference for anyone interested in bronchiectasis to learn more about the disease, gain insights into the current research taking place in bronchiectasis, and get advice on how to better manage the disease from the world’s expert healthcare professionals and from patient’s themselves.

The conference is held in English, with live transcription in over 60 languages.  

To learn more, register to attend this year’s Bronchiectasis Patient Conference, or watch previous editions of the conference, visit: https://europeanlung.org/en/get-involved/events/bronchiectasis-patient-conference-2025/

Bronchiectasis Question Time

Recommendations for Travelling with Bronchiectasis

Bronchiectasis Empowerment Pack

This free 1-hour webinar is aimed at people with bronchiectasis and their family members/caregivers, giving them the opportunity to ask questions to a panel of bronchiectasis experts. 

The audience can pre-submit their questions after registering for the webinar, or can ask their questions live via the online chat, and the experts answer as many questions as they can during the webinar. 

The Question Time Webinar takes place on the lead up to World Bronchiectasis Day (July 1st).

To watch the previous edition of the Question Time Webinar, visit  https://europeanlung.org/en/get-involved/events/bronchiectasis-question-time/

These recommendations were made based on the answers 26 bronchiectasis experts gave in response to a questionnaire generated by bronchiectasis patients asking for their advice on a series of travel-related concerns felt by those with bronchiectasis. 

Healthcare professionals gave their expert recommendations on:

  • Safety of travel, including choice of destinations and activities
  • Choice of travel insurance
  • Carrying medications and devices, and how to store medications properly
  • Maintaining regular treatments in transport
  • Documentation to be provided
  • Oxygen requirements

This pack is a shared resource designed for both patients and clinicians. Its purpose is to support open communication, promote shared decision making, and ensure that everyone involved in managing bronchiectasis has access to trusted, practical information.

Nebuliser and Inhaler Guide

More bronchiectasis resources coming soon...

This guide is designed to help adults understand how to use nebulisers and inhalers, and how to choose a device that works best for them.

The guide covers:

  • What is an inhaler, a nebuliser, and inhaled medicine?
  • Different types of nebulisers and inhalers
  • A step-by-step guide on how to use a nebuliser
  • Getting the most from your nebuliser treatment
  • Mixing nebulised medicines
  • Questions a doctor or healthcare professional might ask when deciding on which inhaler or nebuliser is suitable for you

General Resources on Bronchiectasis

If you are visiting this website for more information about bronchiectasis, living with bronchiectasis, or how to improve self-management of the condition, we encourage you to visit:

http://www.europeanlung.org/lung-disease-and-information/lung-diseases/bronchiectasis for the most up to date patient information. 

https://www.europeanlunginfo.org/bronchiectasis for patient-friendly, accessible information, including videos – much of which has been translated into multiple languages including French and Dutch. 

https://europeanlung.org/en/information-hub/guidelines/managing-bronchiectasis-in-adults/ for the ‘Managing adult bronchiectasis – understanding the professional guidelines’ document – a patient-friendly, version of the European Respiratory Society’s Bronchiectasis Treatment Guidelines (2017) created by the ELF and the Bronchiectasis PAG which has now been translated into multiple languages.