🌍 Today is #RareDiseaseDay and to celebrate we are raising awareness of Primary Ciliary Dyskinesia (PCD)!💙

PCD is a rare genetic condition where the microscopic hair-like structures that line the airways, ears and reproductive system (called ‘cilia’) fail to function correctly, which can lead to chronic infections, breathing problems, and infertility.

The majority of people with PCD go on to develop bronchiectasis, and we are very excited to help share the news of a patient-friendly resource dedicated to PCD!🫁

This information page created by the European Lung Foundation and BEAT-PCD | Better Experimental Approaches to Treat PCD is designed to help patients, families and caregivers understand PCD, including:

– 🫁What PCD is and what causes it

– 😷Common symptoms

– 🩺Diagnosis of PCD

– 📚Treatments support options

You can find the resource here👉: https://europeanlung.org/en/information-hub/lung-conditions/primary-ciliary-dyskinesia-pcd/ 

🌍 ‘Rare Disease Day‘ helps to raise awareness for patients, families and carers around the world that are affected by rare diseases, especially those that are often misunderstood or overlooked.

🗣️ Please help us share this resource and support the bronchiectasis and PCD community!